Talking about an ovarian cancer recurrence

Get advice on sharing the news that your cancer has returned and what to do if you're worried that other family members may be at risk of ovarian cancer.

Sharing the news 

The way you find out about the cancer coming back may affect how you share this news with others. If you receive the news alone, sharing it with other people can feel like an extra burden. It may be especially hard if you are not sure how you feel or what a recurrence means for you right now. You may wish to wait a few days, weeks or longer before you tell others. You may wish to keep the information within close family or friends. Or you may want to ask someone close to you to let others know for you.

Some family members may not be ready to talk at the same time as you. This can make it hard to talk to each other. Even if your family aren’t the type to talk about their feelings, talking to a health professional, a counsellor or a nurse may help them feel more able to cope.

It may be that encouraging them to speak to someone about their feelings will help them to understand your diagnosis and some of their own worries. In turn, this may help them to better support you. Being able to talk honestly about your different needs for information and support will help you to understand each other at this time.

Your CNS and Target Ovarian Cancer can help your family and friends to find more support. You may want to encourage them to get in touch with our support line, which is for everyone affected by ovarian cancer, including friends and family.

Image of Back here again guide

Back here again

A guide for anyone whose ovarian cancer has come back.

Coping with the reactions of others 

You may have found from your first treatment that people around you can react in very different ways. Some people may be wary of talking about cancer with you. Others will want to talk about nothing but your diagnosis. Let people know when you do, or don’t, want to talk.

Some people don't want to talk about my recurrence at all, and I think it's for fear that they will upset me. I'm constantly saying to them ‘you're not bothering me, I'm happy to talk about it.’ And if I know I don't want to talk about it on a particular day, I'll just say.

Wendy

You may find that people around you use words such as 'brave' and 'strong'. They may tell you they could never cope in the way that you are. The reality is we all cope in our own way with what life throws at us. Whatever you think and feel about this, try to be kind to yourself and remember that people will respond in different ways but are likely to mean well.

It may be that those close to you find the news frightening. It may sometimes seem that they are finding it harder to cope with than you. You may be finding extra reserves of strength to face this next challenge and get through it.  

Maybe you are the one who wants as much information as possible, while the people supporting you want information only on a need-to-know basis. You may even find yourself feeling guilty and wanting to protect those around you from worries.

Any strains in your relationships with others can be extra challenges. They may feel as stressful as dealing with the cancer returning. But we can’t control other people’s reactions and emotions. You know your family and friends and their personalities, and you know what they were like before your cancer diagnosis. They will probably react based on their personality and how they feel about their own lives in relation to your diagnosis. You may be surprised, sometimes people find an inner strength that you just weren’t expecting. They may be inspired to swing into problem-solving mode to support you.  

I’ve had great support from my family and friends, everybody has been mindful of making everything as easy as possible for me. But I have lost a few friends along the way. I think they just don’t know how to deal with it. And that’s fine, it's just one of those things that happens.  I have made new friends in my village from being out walking the dog more. I’ve also made friends with people from Maggie’s. Sometimes the most important thing is being able to say to somebody, ‘I’m having a really bad day, fancy meeting for a coffee?’ And that person will make you feel better.

Wendy

Target Ovarian Cancer’s specialist nurse-led support line and your CNS can provide information about where friends and family can find more support.

Couple linking arms and walking

Support for family and friends

Concern for family members: genetics and hereditary ovarian cancer 

When you have a diagnosis of ovarian cancer, it is common to worry that your family members may be at risk. In most cases, ovarian cancer is a one-off (sporadic) illness that is not related to family history. But up to 2 in 10 cases of ovarian cancer are hereditary and happen because of a genetic cause. A genetic cause means there is a variation (or a change) in one or more of your genes that increases the risk of ovarian cancer. This variation will have been inherited (passed on) from your mother or father before you were born and could be passed on to your children if you have them.  

Genetic testing for you

If you have been diagnosed with epithelial ovarian cancer you should be offered access to genetic testing for variants in your BRCA1 and BRCA2 genes, even if you have no family history of ovarian cancer. It is likely genetic testing was done at the time of your first treatment. If this wasn’t the case for you, talk to your oncologist or CNS. 

Genetic testing for your family

If you have a gene variant in your BRCA1 or BRCA2 gene, your family members will be able to have genetic testing too. They will be able to find out if they also have the gene variant. If they have one, they will get information about what they can do to manage their increased risk of ovarian cancer and some other cancers, such as breast cancer and prostate cancer. 

Genetics guide

Genetic testing and hereditary ovarian cancer guide

More information about hereditary ovarian cancer, genetic testing and the impact of the results.
Rachel and Val Target Ovarian Cancer nurse advisers

Our support line is open Monday-Friday, 9am–5pm

Last reviewed: January 2025

Next review: January 2028

 

To learn more about our review process, take a look at our information standards.