Dr Barber presenting a talk on ovarian cancer

Ovarian cancer: Think abdominal cancer

Target Ovarian Cancer's Senior Healthcare Engagement Officer, Amy Schofield, writes about the recent Public Care and Public Health conference in May 2023.

Ovarian cancer is often classified as a gynaecological cancer, but the main symptoms are abdominal. At Target Ovarian Cancer, we're urging clinicians to recognise that ovarian cancer presents as an abdominal cancer.  

Primary Care Advisory Board and Target Ovarian Cancer GP Ambassador Dr Victoria Barber says:

Ovarian cancer does not present as a gynaecological cancer. It is vital that GPs, physicians' associates, practice nurses – the whole primary care team – recognises that any abdominal symptoms could equal ovarian cancer.

Speaking at the Primary Care and Public Health conference at the NEC in Birmingham on 18 May, Dr Barber set out her stall early; addressing the busy hall in the Women’s Health Theatre with a presentation which immediately grabbed the audience’s attention ‘Ovarian cancer: An abdominal cancer’.  

Dr Kevin Barrett underlined Dr Barber’s key message in his own presentation to GPs ‘A user-friendly guide to IBS management in primary care’, emphasising ovarian cancer as a differential diagnosis with bowel disorders. 

From the moment that Dr Barber’s talk ended, Target Ovarian Cancer’s stand was inundated with delegates who had felt the full impact of her words. One primary care clinician commented: “I’m thinking back to all the women I’ve seen with IBS who I might have missed as potentially having ovarian cancer.”  

Dr Barber presenting a talk on ovarian cancer

This shift in understanding of the disease – from a gynaecological to an abdominal cancer – prompted many clinicians to ask questions, ask for more information, and find out how the charity could support them in diagnosing more women faster and earlier.  

A recent Target Ovarian Cancer project trialled three primary care interventions to improve early diagnosis of the disease - a clinical IT alert tool, a retrospective audit search and safety netting search.

They assist primary care teams to act confidently on possible ovarian cancer symptoms; to recall women with possible ovarian cancer symptoms who have not had a CA125 blood test; and to safety net women who have persistent symptoms but whose CA125 blood test results and ultrasound scan are reported as normal.  

Two of these interventions specifically target women with abdominal symptoms. The IT alert is one that comes up on screen with advice to test CA125 and review NICE guidance when a woman over 50 is coded with a new diagnosis of IBS or diverticulitis and there has been no recent CA125.

The retrospective audit consists of an audit search that brings up a list of women coded with a new diagnosis of IBS or diverticulitis in the last six months, with no recent CA125 result. In the pilot, those women were called by physicians associates and invited to undergo the test. The practices taking part reported that patients were keen to undertake the test and be checked.  

Ovarian cancer symptoms recognition and diagnosis could be transformed with this simple change in perception – from a gynaecological cancer to an abdominal cancer. 

A headshot image of Dr Barber standing outside in the sun smiling
We need to change the mindset. Ovarian cancer presents as an abdominal cancer with abdominal symptoms. In a nutshell, NEVER diagnose IBS or overactive bladder in older women without ruling out ovarian cancer.
Dr Barber

Remember

Ovarian cancer can cause bloating, abdominal pain and a change in bowel habit. It can cause urinary symptoms, extreme fatigue and weight loss. 

Don't get caught out:   

Doing a FIT? Do a CA125 

New indigestion or weight loss? Do a CA125 

Sterile dysuria? Do a CA125 

Ordering an endoscopy? Do a CA125 

IBS or ovarian cancer?

Irritable bowel syndrome Ovarian cancer
Defecation relieves pain Defecation does not relieve pain
Mucus associate Mucus unlikely
Bloating intermittent Bloating persistent (distention)
Bloating worsens during day Bloating present upon waking

Do not diagnose new IBS in the over 50s 

Resources for clinicians 

We have a number of resources and educational offerings to support you in diagnosing ovarian cancer in primary care. Undertake our accredited training programmes and improve your awareness of ovarian cancer symptoms and diagnostic tests.

Check out our training programmes 

Printed resources: 

  • Ovarian cancer facts poster 

  • Red Flags postcard 

  • Ovarian cancer? Think abdominal cancer poster 

To order these resources, email [email protected]

You can also order symptoms awareness leaflets and more supportive resource for your patients.

Order our support resources

Refer your patients to our specialist nurse-led support line, which you can also call on for support if you have a suspected case of ovarian cancer and need advice: 020 7923 5475 or email [email protected] 

Join our Early Diagnosis network, a UK-wide community of NHS primary care, secondary care and commissioning professionals dedicated to improving early diagnosis of ovarian cancer by removing barriers in the local pathway.  

Join the Early Diagnosis network